Waiting Game

We’ve hit a little set back right now with Chris’s chair that is pushing our timeline for the truck back maybe a little bit. He was hoping to get in touch with OVR at the beginning of the year but over the holidays his new chair (less than 6 months old) had a major electrical breakdown. It has already been 4 weeks and we are still waiting for insurance approval to have it fixed.

The chair went down after a little bit of water got into one of the chair mechanisms, specifically they believe it was the tilt and it fried the electronics. It has gotten wet before and just caused temporary errors. This time it didn’t come back. We went to a family Christmas party and it was lightly misting. It was covered even the part that got damaged. I’m still not sure how the rain got in but that is one of the problems with the current carrier system we are using with our current vehicle. The chair is out in the elements and even with a cover we can’t be sure it is completely protected.

Chris was then using his old power chair to get around the house and we were using his manual chair for work and outings again but now even his backup power chair broke down (it was on it’s last leg too and they will not fix an old chair. That one has an electrical issue as well.) We’ve become temporarily limited again for our everyday activities because of not having his power chair. Trying to get out while having to push Chris and keeping two 4 year olds safe is very challenging. Both of our boys have developmental delays that cause impulsive behavior and they don’t think about straying from us no matter how many times we correct them and explain the how’s and why’s they need to stay with us. We’re working on it but it is so much more challenging when I’m needed to push Chris and keep both of them with us. When Chris has his power chair he can help to chase down one of them if need be.

He is also temporarily off work due to having to use his manual chair constantly right now. He’s in a considerable amount of pain in his left hip because he cannot move himself as effectively to get comfortable. He doesn’t have the ability to change the angle he’s sitting in with the push of a button. Think about if you had to sit in the same position for 8 hours plus being essentially unable to change it. You wouldn’t be very comfortable so he is home right now so that I can help change his position and move him from his chair to bed as needed.

The other set backs with him not having his chair means he can’t call OVR and get the hand control evaluation he needs. He needs the evaluation to determine the best hand controls for him which means he needs his chair so they can properly determine the equipment that will work for him and with his chair. Getting the driving evaluation will be the first step in getting the truck and it can’t be done without his chair. He doesn’t want to get set up and then not have his chair to be evaluated.

Right now we’re enjoying a bit of unplanned extra family time but it’s not the way we would have planned a “vacation” that’s for sure. After getting everything squared away with his chair we’ll be getting in touch with OVR. At that point we will most likely will have our vehicle paid off (March 9th is the payoff date) and be putting all of our energy into making Chris’s dream of driving a reality! Stay tuned for upcoming events…

Frustration….

Christmas Eve was marked with frustration. We had a doctor’s appointment in Hershey for Harley. Chris wants to be there for appointments when he is able and today he should have been able to have been there. Well he was sort of…
The day started by picking Chris up at work. Very bitter cold and my hands felt it trying to tie down his chair. We get home and just a little more than an hour after we got home I was reloading his chair again in the same bitter cold.
We pick up Harley and head to Hershey. There is an accident that slows us for over a half an hour meaning we end up 15-20 minutes late for his appointment. We were lucky they decided to see him but that also meant we didn’t have time to unload Chris and his chair.
He ended up sitting in the car for a total of about 5 hours because we didn’t have time to unload him. Harley and I were in the doctor’s office for a good 2 of those hours. In that time it decided to snow unexpected to us. His chair was covered but the base where the electronics are weren’t completely covered because we didn’t intend on him sitting in the car for those 2 hours. That means his chair was somewhat exposed to snow, not exactly the best situation!
He was a little sore from sitting in that seat with no extra cushioning because of it not being planned. I hate situations that we plan extra time and it’s still not enough! Needless to say even if we were running late with the truck at least Harley and I could get out and run in and if it would take Chris a little longer at least he could get himself in and out of the vehicle and not be stranded for 2+ hours!
He missed another appointment due to circumstances beyond our control and I know it irritated him! It wasn’t anything exciting or fun but he wanted to be there for his son and missed an appointment due to not having the freedom of a properly equipped vehicle for his needs.