It’s home…for now!

IMG_0012IMG_0010IMG_0011IMG_0013IMG_0019IMG_0014IMG_0018IMG_0016IMG_0015IMG_0020

Advertisements

It’s just a giant r/c car!

Here’s a video from the parent company Bolduc Technology Group (military contractor) that make the AEVIT system that will be installed in my truck. I’ll drive with a joystick instead of remotely but you get the idea. EMC-Digi is the one that handles the mobility end of their products.

Upshift Summer Bash Car Show Registration

Here is the registration for the Upshift Summer Bash Car Show.
It’s open to anything and is a more casual meet type show. Bikes are welcome. Join the Facebook event here: Upshift Summer Bash Facebook Event


To relieve any confusion with pre-registration, you must go through all the steps to checkout. When you get to the shipping and billing information there is a spot on the right hand side that asks for the  $5.00 off code. Click on it and enter the code below for the discount.

$5.00 off Pre-registration promo code: UPSBH2014
Register Here – Upshift Summer Bash Registration

UpshiftBash_CarShowRegistration

Mail-In Registration Form
*Discount code cannot be used with the mail-in registration.

Our biggest event yet Is In The Works!!!

We have been working on this idea for a year now and we have finally found the PERFECT location! Lots of open room, wonderful playground for the kids and room to spread out! Are you ready to know who, what, when where and why? Keep reading!

We are working on making this our biggest fundraiser yet for Chris and our goal to raise the rest of the $10,000.00 as a down payment on a wheelchair accessible truck for him. We are getting so very close to our goal and we will reach our goal if it all goes according to plan!

We are planning a car show/ food truck/ vendor show for Saturday August 16, 2014 from 10:00 am-4/5:00pm (still not definite on all of our times yet.) We will be at Leg Up Farm in Mt. Wolf. This is a totally awesome venue and we are already familiar with it because our sons Harley and Tucker attend therapy there. They have gorgeous walking trails, an awesome coi pond, and a giant ADA Compliant playground. Enjoy the day with the whole family.

We are in the planning stages right now for the entire event and will have more details as we figure things out! Our last big fundraiser was November and was a huge success. This event promises to be even more fun and exciting with the addition of a car show and food trucks along with the vendors!

Please let us know if you can help in any way. We will definitely need more man power for this event so any and all help is appreciated!

Waiting Game

We’ve hit a little set back right now with Chris’s chair that is pushing our timeline for the truck back maybe a little bit. He was hoping to get in touch with OVR at the beginning of the year but over the holidays his new chair (less than 6 months old) had a major electrical breakdown. It has already been 4 weeks and we are still waiting for insurance approval to have it fixed.

The chair went down after a little bit of water got into one of the chair mechanisms, specifically they believe it was the tilt and it fried the electronics. It has gotten wet before and just caused temporary errors. This time it didn’t come back. We went to a family Christmas party and it was lightly misting. It was covered even the part that got damaged. I’m still not sure how the rain got in but that is one of the problems with the current carrier system we are using with our current vehicle. The chair is out in the elements and even with a cover we can’t be sure it is completely protected.

Chris was then using his old power chair to get around the house and we were using his manual chair for work and outings again but now even his backup power chair broke down (it was on it’s last leg too and they will not fix an old chair. That one has an electrical issue as well.) We’ve become temporarily limited again for our everyday activities because of not having his power chair. Trying to get out while having to push Chris and keeping two 4 year olds safe is very challenging. Both of our boys have developmental delays that cause impulsive behavior and they don’t think about straying from us no matter how many times we correct them and explain the how’s and why’s they need to stay with us. We’re working on it but it is so much more challenging when I’m needed to push Chris and keep both of them with us. When Chris has his power chair he can help to chase down one of them if need be.

He is also temporarily off work due to having to use his manual chair constantly right now. He’s in a considerable amount of pain in his left hip because he cannot move himself as effectively to get comfortable. He doesn’t have the ability to change the angle he’s sitting in with the push of a button. Think about if you had to sit in the same position for 8 hours plus being essentially unable to change it. You wouldn’t be very comfortable so he is home right now so that I can help change his position and move him from his chair to bed as needed.

The other set backs with him not having his chair means he can’t call OVR and get the hand control evaluation he needs. He needs the evaluation to determine the best hand controls for him which means he needs his chair so they can properly determine the equipment that will work for him and with his chair. Getting the driving evaluation will be the first step in getting the truck and it can’t be done without his chair. He doesn’t want to get set up and then not have his chair to be evaluated.

Right now we’re enjoying a bit of unplanned extra family time but it’s not the way we would have planned a “vacation” that’s for sure. After getting everything squared away with his chair we’ll be getting in touch with OVR. At that point we will most likely will have our vehicle paid off (March 9th is the payoff date) and be putting all of our energy into making Chris’s dream of driving a reality! Stay tuned for upcoming events…